My Son...The Treasurer? - by Cara Potapshyn Meyers

My son is a natural born leader. I don’t say this just to puff myself up. In fact, I envy his innate abilities. I’ve witnessed his talents since he was a toddler. The kid just has what it takes. You can spot it a mile away.

His elementary school decided to form a Student Government. Two children from the 3rd, 4th and 5th grades were chosen to form the committee. I asked my son’s teacher how it came to be that my son was chosen. She said that first each 3rd grade class had to nominate one person. Then the individual class nominees were up for democratic voting by all of their 3rd grade peers. My son won! What an incredible honor! I can’t even think of two kids I was even close to when I was in 3rd grade!

It didn’t surprise me that my son was chosen. The kid can make friends with a tree. What did surprise me was that my son has learning disorders and the school administration is still allowing my son to participate. I give the school kudos. Especially since it took two agonizing years to get special services for my son.

My son is beyond elated! He was dressed and ready to go to his first meeting last week an hour ahead of schedule. He nagged us to go to the school before it was even open! He glowed when he told us how his first meeting went. A plethora of creative ideas for various goals were spewing out of my son’s mouth so fast, I thought he would pass out from not taking a breath! Now the Student Government must decide on a President, Secretary and Treasurer. Only fifth graders are allowed to run for President; fourth graders for Secretary and third graders for Treasurer. Guess who wants to run for Treasurer?

My son has no problems with math or money comprehension. Thankfully, math is one area he excels at. My only fear for him is that he has to write a speech to present to his peers explaining why he should be chosen as Treasurer. A speech. Something you have to write. An area where all of his deficits lie.

We engaged his tutor to help him with his speech. It is basic. Not terribly convincing. However, I can visualize my son making this rather dry speech into something completely engaging. He has that “gift.”

I, the “Free Range Mom” who practically throws my son out of the nest, shouting, “Go for it!” am a little apprehensive for my son. He is getting better at dealing with failure. Yet, he is so convinced that he will be chosen as Treasurer, that if he is not chosen, I will be wondering whether it was because of his learning deficits. I would never relay these fears of mine to him. But I will be thinking of it. A lot.

I should, and am so grateful that my son was nominated and chosen to represent his class. He has myriad ideas about fundraising, raising money for charities, inspiring more “school spirit,” etc. He will be a perfect asset to the Student Government regardless whether he wins as Treasurer or not. Still, that nagging doubt will remain in the back of my head if he does not get chosen.

I want my son to win as Treasurer. I want him to win because I know he can carry out his responsibilities and be a highly enthusiastic part of the team. I want him to win because even though his writing and reading are sub-par, he can still show the world that he can accomplish what he sets his mind to regardless of his deficits. I want the school to see that regardless of “disabilities,” there are many ways a child can prove their value and worthiness. I want him to continue to nurture his amazing, innate characteristics! They have gotten him quite far in his short life. I want them to take him to the moon and back. And just possibly, to the Presidency!

I’ll be keeping my fingers crossed. Toes too! You go, kid!!

My Misunderstood Child - By Cara Potapshyn Meyers

"Shades of the prison-house begin to close

Upon the growing boy..."

- Wordsworth

Every August, before school begins for the new year, my son is retested for his myriad learning disabilities. We chose August because as parents, we want to know how our son is doing immediately prior to school beginning. By doing this, we can discuss with the school what services my son would possibly need. For the past two years, the professionals have recommended intensive services and interventions for my son. 

This year, my son scored the lowest he ever had before on each of the different assessments. Each professional was outraged that, despite their strong indication for intensive services, my son has been given the smallest amount of services possible. My husband and I had requested meetings with the principal and administrators, whom all blatantly disregarded our requests. Now my son is in jeopardy of failing out of third grade without having even stepped into his new classroom.

We will once again ask to meet with the administrators of my son's school to see whether they will comply with the lengthy list of accommodations my son will need. By law, the school has 30 days to begin to act on our request. If nothing is being done, we were given the name of a lawyer who works with cases such as ours, in our school district, to advocate what is needed for our son. We understand that this lawyer is a "wolf." I think that a "wolf" lawyer is a perfect match for our school district.

Ever since I started to prepare appointments to be made for my son, I have been reading a book called, "The Unromantic Child," written as a memoir by Priscilla Gilman about her disabled son. Even with it's unusual title, this book had been calling me. I kept seeing advertisements for it. The author did interviews about it. For some reason, I just couldn't get this book out of my mind. I ended up buying it.

I won't reveal the details of the book, other than to say that if you are the parent of a Special Needs child, you should read this book. I haven't finished it yet, however I feel that this book resonates my life with my son. It also validates many of the feelings that a parent of a Special Needs child goes through, especially a Mother. Ms. Gilman writes, "Life is a wild roller-coaster right now and I am hanging on for dear life. To think that after all the work and time I invested into finding ways to help my son, the fact that it may not work out is extremely dispiriting and scary." She goes on to say, "How very much I love him, how much I want him to be happy, how agonizing it is to think of him suffering and unable to express himself because of his language issues. There is nothing I wouldn't do for him but I'm not sure what to do, and that is the most frustrating thing of all."

I know exactly how she feels. I wake up every single day wondering how I can better manage my son. Can I do anything more than I am doing to see my son exceed. My son happens to also be very bright. Every professional that has tested him has uttered those very words. What must it feel like to be aware of the fact that certain things you learn come so easily for you, it almost seems like osmosis? On the other hand, because you are so aware, you just can't comprehend why simple things, such as reading and writing seem so "natural" to those around you, yet you just can't do it, no matter how hard you try? I am in constant wonder as to what that must seem like. It would be one thing if my child had deficiencies across the board. But to know that he identifies his deficiencies and they don't make sense to him, breaks my heart even more. What must it appear like having a discussion about how the earth moves in two different ways, yet be unable to even be able to spell "planet." I simply just cannot imagine.

I remain steadfast in my optimism. As Ms. Gilman relates, "In the last month, I've realized in a way I never had before that this is and will be my life - this day-to-day work on and for my son. He will improve and develop and there will be many rewarding moments. But he has a lifelong disability and he will always need loads of effort on his behalf, both in every single interaction with him and with his teachers and therapists. It can be extremely exhausting and overwhelming...But the blessings of being his mother far outweigh the worry and stress and fatigue. Truly he has made me infinitely stronger, more patient, and compassionate person. I can do this. But I will need all the support and love I can get behind me." I am eternally thankful for all the support that I have garnered over the years, as well.

I am interested and eager to see what this school will be doing for my son this year. I am especially relieved that I will be able to call on "Mr. Wolf" lawyer if needed. Based on past experience with this school, I intend to be having conversations with "Mr. Wolf" within the next month or so. This is a huge relief. The "fight" in me is always there, but I end up entirely worn at the end of it. It's the same with my divorce lawyer. I get upset about issues, call my lawyer, she takes care of them. I go on my merry way. I want the same from "Mr. Wolf." Let him write letters, make calls and fight the school administrators. It will be one less constant anxiety to live with. I can already feel the tension release in my body.

As for my son. He is persistent and unrelenting. If he wants something badly enough, he will find a way to make it happen. Like opening a "child proof," empty medication container today. He constantly amazes me. I anticipate he always will.

"A temper known to those, who, after long

And weary expectation, have been blest

With sudden happiness beyond all hope."

- Wordsworth, "Nutting"

Loving Too Much - By Cara Potapshyn Meyers

Is there such a thing as loving someone too much? And if so, where is the line that delineates this?

I ask this because the stress of my pending divorce and my son’s unattended to learning disabilities has gotten me so stressed out, I feel like I am holding on by a thread. When I discussed this stress with my various therapy professionals last week, each one of them replied, “Forget about your son. Focus on yourself.” Forget about my SON?? That’s like asking me to forget to breathe! Every ounce of stress in my life exists because of the love that I have for my son!! I am getting divorced because my husband and I couldn’t see eye-to-eye regarding my son’s learning disabilities, and he just wanted to brush them under the rug while I fought like heck to get my son the services and accommodations he needs and deserves! Is THAT loving too much?

I am stressed out every second I am with my son, trying to manage his behavior, his meltdowns, his rambunctiousness and how it affects not only the two of us but also the environment around us.

I am stressed out every second because every interaction with my son will ultimately hinge on the type and amount of custody I ultimately receive from my divorce because the divorce laws have changed drastically over the past 6 months.

So why are these professionals telling me to “forget” about my son?? If my son were not in the picture, I might or might not be getting divorced. I wouldn’t have any educational challenges to deal with. And if I were divorcing, it would be a piece of cake: This is yours, this is mine, have a nice life. My stress level would be minute compared to what it is now.

Where does that leave me as a Mother? I decided to research this area a little and find out if there is such a thing as loving your child too much. Not in an overindulgent, let your child rule your world type of excess. But fighting for your child and your child’s rights. Being their advocate. Making the best decisions possible type of love. Is there such a thing as too much loving in these areas?

I did a google search on this topic. Many articles focused on overindulging a child with material things or giving in to them too much. I wanted something deeper. I came up with a few provocative articles that go beyond the obvious.

In an article written by Jane Nelsen and Cheryl Erwin, titled, “Is It Really Possible to Love Too Much?," the authors state that, “Divorcing parents may lack knowledge about the effects their actions have on their children. These parents will claim they want custody, ‘Because I love them.’ Parents also love their children too much when they can’t see that they are doing ‘bad’ while claiming to do ‘good.’”

Another article by Rod Smith, titled, “Loving” Children Too Much" brings across some food for thought. He argues that children are loved too much when their wants are habitually placed ahead of the needs of the parents,” (okay, well maybe my own needs are not getting met because I am consumed by my son’s needs?). Smith also states that a child is loved too much when a parent gives up all of their former hobbies and interests and focuses all of their energy on their children,” (Umm...like the 20+ parenting books I have at my bedside instead of the novels I used to read, once upon a time?). Looks like we may be getting somewhere.

The third article is a blog written by Aaron Ben-Zee’v in Psychology Today. In this blog, he deduces that, “Even if love were concerned solely with disinterested care for the beloved (and this is not obviously so), there is still the question of what constitutes proper caring. Love is not a merely theoretical attitude; it has profound behavioral implications for our life. And if such behavior becomes improper, then the issue of whether one can love too much might arise.” Improper as in focusing on your loved one’s needs rather than on your own?

Now, I think I get what all of the therapy professionals were trying to elude to: I have completely abandoned my own essential needs - all the way down to eating - to care for and try to be the “best” Mom I can for my son. I wasn’t paying attention when the airline attendant was demonstrating that you need to put on your oxygen mask first before you place it on your child. I know now that I need to focus on taking care of me a little more, otherwise the oxygen will run out and I will be of no service to myself or for caring for my son. There needs to be a shift in priorities.

Now, if I could only let go of my wonderful, amazing little boy in my head for just a little while...

For you see, each day I love you more...

Today more than yesterday and less than tomorrow.

~ Rosemonde Gerard

What is “Better?” - By Cara Potapshyn Meyers

“BETTER” - of superior suitability, advisability, desirability, acceptableness, preferable”

I must admit that I was humbled by the number of concerned and genuine written and verbal comments my blog elicited last week. However, as true as all of the comments were, the essence that I took away from all of them was that my life would eventually “get better.” So I began to ponder both my life and the term, “better.” I came up with a list of questions that will sound bitter, and angry, and sarcastic because...well...I AM feeling bitter, angry and sarcastic. So, for those of you who truly had my best intentions in mind, and I sincerely appreciated all of them, please see past the bitter feelings and reflect on these questions:

Is “better” having my son ripped from his family unit and having to share time between two parents?

Is “better” being a single Mom to a child with multiple learning disabilities, and having to be the primary caretaker?

Is “better” having a child learn to deal with two different parenting styles, one of which is completely against his nature?

Is “better” having to pay a divorce lawyer almost $2000 of what was going to be my son’s college money just to fill out stupid, inane, paperwork when my child could have perhaps put that money into 2 college classes later in life?

Is “better” having one of your two pets, both of which your child adores, practically taken away because that pet favors the other parent?

Is “better” having to deal with stress related illnesses just about every single day, watching your own body become feeble and frail in the process?

Is “better” having a child have to share holidays, vacations and birthdays between each parent?

Is “better” attending a special event of your child’s, standing on the opposite side of the room from your former spouse, having as little communication as feasibly possible with that spouse, cheering on your child, hugging and kissing him for doing so well, and then having both parents leave in separate cars?

Is “better” not only not knowing what to say to friends when they inquire about the impending divorce? And is “better” having a child wonder what the heck is going on in their family but barely able to comprehend, let alone ask appropriate questions about what the heck is going on, because you don’t even know yourself? 

Is “better” having to linger in this “lifestyle” until your child goes off to college, which will roughly be 10 years from now?

After contemplating the smattering of questions I exemplified, can anyone honestly tell me that my life will get “better?” I seriously doubt so. Although I am open to being receptive to comments to the contrary.

I made a conscious decision to have a child and build a family. I looked forward to having a loving spouse, who would be there for this family during good times and in bad. I may never know just what went awry. But what I am experiencing and will be experiencing is far from “better.” And it’s a damn shame, especially for my child. Because out of us all, he’s the one who deserves “better.”